Ben Behind His Voices Blog

One Family’s Journey from the Chaos of Schizophrenia to Hope

NEW!– the Ben Behind His Voices audiobook has been updated with a new intro, epilogue, and bonus material! – available only in audiobook form. (updated 2022)

Hear all of the original award-nominated memoir, and find out what has happened in the decade since. We continue our journey through crisis, help, and into hope.

resources and reading Randye Kaye resources and reading Randye Kaye

Four Rooms, Upstairs: A Psychotherapist's Journey Into and Beyond Her Mother's Mental Illness

Four Rooms, Upstairs: A Psychotherapist's Journey Into and Beyond Her Mother's Mental Illness

Four Rooms, Upstairs: A Psychotherapist's Journey Into and Beyond Her Mother's Mental Illness by Linda  Appleman Shapiro

My rating: 4 of 5 stars

Linda Appleman Shapiro writes honestly and beautifully about her experience as the daughter of a mother with mental illness, coping with  the confusion of the mood swings, her struggle to understand, and the stress and shame of keeping it all a secret. We meet her family members - Linda, her mother and father, and her brother - and soon the dynamic in her Brooklyn home becomes clear - as does the love that prevails.

In addition, we get a nostalgic peek at life in Brighton Beach, Brooklyn, back in the 40's and 50's, when "hanging out at the beach" was a huge part of a young teenager's life. Shapiro has the hindsight, now, of a trained and experienced psychotherapist.  This, combined with her clearly-depicted childhood memories of life in those "Four Rooms" makes for an engaging, enlightening and ultimately therapeutic read.

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Beyond Trauma

I had the pleasure of presenting with Linda Appleman Shapiro, author of Four Rooms, Upstairs: A Psychotherapist's Journey Into and Beyond Her Mother's Mental Illness, last week at the library in Ridgefield, CT. Each time I tell Ben's (and our family's) story, I see at least one face in the audience that seems to open with relief: Can we really talk about these secrets? Is mental illness really not the source of shame I've been assuming it is?

Yes, let's talk. A mental illness is just that: an illness. It is no one's fault. It just is.

Great books for practical advice:
When Someone You Love Has a Mental Illness by Rebecca Woolis
I'm Not Sick, I Don't Need Help - Xavier Amador - great info, "system" doesn't always work, but helps understanding greatly
and - believe it or not, for basics - there are "dummies" books for schizophrenia, bipolar, etc.

What familes need:
Support
Education
Acceptance (Letting Go)
Reality check, Respect, Resilience
Communication
Hope - and, yes, Humor

It spells SEARCH.
My son Ben is living a very worthwhile life, filled with love, even with paranoid schizophrenia. Even so, my expectations have changed. It is a new normal. R for reality...

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