Update: Two More Years into Schizophrenia Journey
snow…like the symptoms that can coat Ben’s thoughts
Yesterday I was alone with Ben all day. Huge snowstorm, hubby away in California, daughter and her husband in their own apartment, driveway covered with a foot of snow. Ten years ago this would have been a recipe for all sorts of disaster: frustration, loneliness, trepidation. Instead, thanks to treatment which includes medication as well as the other cornerstones of recovery (community, purpose, structure), I was actually glad to have Ben's company. Here is what happened:
Ben helped me shovel the driveway - I mean really helped, as in he did 75% of the work.
Ben cooked us a delicious homemade pizza for dinner.
We watched an animated movie - well, parts of it - during the required "watchful time" after he takes his meds.
Any parent of someone with schizophrenia will tell you that this is a day to be grateful for - and I am, believe me. No, life isn't perfect, and I still wish for the magic wand (or, more to the point, better research and treatment options), but still I know a good day when we see one.
I'm also thrilled that the book still reaches people, two+ years after publication. Although there have been a few changes in our situation since then (two more relapses, a disastrous foray into "independent living" for Ben resulting in our current living situation where he is at home with us, -with a roommate to boot-, and both a part-time job and more college credits earned), the story of our "journey from chaos to hope" remains relevant- at least according to the readers who have written to me. I am so grateful for the feedback, and the chance to share that continues with each reader (or listener to the audiobook).
Truly honored and grateful...all of a sudden, three new 5-star reviews for Ben Behind his Voices:
1 -"I will probably be listening to the CD over and over again for many years. Gives me comfort and courage to deal with my family member. Thank you so much Randye"
2 -"As a person with schizophrenia, I have never seen the journey through mental illness from the viewpoint of a parent. This book made me think, laugh, cry, and many other emotions. I related in many ways to Ben and saw my own mother in Randye. More people, in varying situations, need to read this eye-opening book."
3- "I am so grateful to the author who shares her story to educate and to enlighten those of us who are taking our first steps out of the chaos"
also came across this one, though it was in the form of a comment on another blog, and I can't find the author's page...(ah, Google Alerts)...
"Ben Behind His Voices is surely an inspirational tale a few family’s encounter with schizophrenia. The main target of Randye Kaye’s book is on her son Ben, who struggled for lots of years with psychological well being and compound abuse matters until finally he was as a final point the right way identified with paranoid schizophrenia. Kaye leads her visitors with the family’s very difficult activities using this ailment and their journey toward restoration and acceptance. This book may be a good source for people with schizophrenia and their families. In addition, it serves as the formidable reminder to psychological well being experts to treat men and women influenced with all the ailment with dignity and compassion."
You have truly made my day, readers. THANKS!
