Book Tour Continues: Trains, Planes, Automobiles

Catching a train to Boston today, then a drive to Marlborough, Massachusetts to participate in the Parent / Professional Advocacy League (PPAL) 2nd Annual Conference & Celebration as keynote speaker, then a car to Logan Intl airport and a plane to Los Angeles for a US Psych Congress regional event. Presenting about partnering for best recovery outcomes in mental illness by sharing our story as told in the book - and in the year since its publication.

After a book-signing, it's back on the plane home to Ben and the rest of the family. After one day together, I drive back to the Boston area to speak with pharmaceutical reps about how more medication options can keep hope alive. Then home, then back to the airport Wednesday - this time to Seattle, to present with Susan Inman, author of After Her Brain Broke, at the NAMI National Convention.

So many are working so hard to increase understanding, reduce stigma, foster respect, advocate for the right to mental illness treatment and better research in the field.  I am so grateful for the opportunities to be one of them. And grateful that the rest of my family is here for Ben, as I travel to hopefully inspire others to become part of recovery in any way they can.

Mental Health Links of Hope and Understanding

There are so many working to increase awareness, reduce stigma,  advocate for proper treatment and services for those with mental illness - and their families. Sharing stories, spreading the word, creating events, producing documentaries, writing letters, speaking to legislators - we are everywhere.

Here are some terrific links I hope you will check out and support - and that they might be of some inspiration to you as well.

Check out this trailer for a documentary-in-progress called Voices. ("A documentary about people who live in the shadows of society") Gary Tsai, a resident psychiatrist in the Bay area, is one of its producers.

Why this film? (still in post-production, not yet released, but there is lots to see on its website)

"Some have been living on the streets for decades, others are now housed, but all are connected by their struggles, and successes, with mental illness. By shining a light on their experiences, we aspire to give them a voice and to humanize their experiences so that they are defined not by their disability or homelessness, but by their unique and compelling stories."

Here is another documentary, which has its first hometown screening tonight in Chapel Hill, NC.

view the trailer here

According to producer KevinCullen, “A Moment of Clarity” is an intimate documentary providing true insight into the world of bipolar disorder told through the life and art of emerging painter Isti Kaldor...Hospitalized during a manic period at UNC Hospital, Isti started to paint. Never having painted prior to his manic break, something in his mind was awoken, the results of which were evident in the dynamic expression of his artwork...(and Isti)has arrived at an unforeseen destination. A place where he can finally do what he dreamed of years ago. Touch peoples lives."

And here is a story of love and friendship:"

Schizophrenia Makes Finding Love Difficult, But Not Impossible"

Another wonderful source of "Links of Hope" come from the readers of Ben Behind His Voices. I am so grateful to you for reaching out to share your stories with me, comment on the book, and continue to spread the messages of understanding and possibility.

One such call led to a chance for me to see a newly-recovered side of Ben's empathy and progress. I blogged about it at healthyplace.com

Together we can truly make this particular change, one story (and, hopefully, solution) at a time.

Thank you for keeping the dialogue going.

Diagnosis at last: Grief and Relief

It's Mental Health Awareness Day, and HealthyPlace.com (host of my Mental Illness In the Family Blog, and lots of great info, encouraged me to do a video post for the "blog party" -

So here it is - one minute about the "moment of truth" when a diagnosis is finally shared. So many emotions.

Living with Schizophrenia: Your Family is not Alone

Best Mothers' Day gift ever: the Miracle of Ordinary.  Just a simple family dinner for 5, out on the deck, with everyone trying hard to do it all without my help (and me trying hard to stay out of the preparations, not always successfully but close!)  Cute. Sweet. In a MasterCard word: Priceless

Why? So much to be grateful for - happy marriages for both me and my daughter, the end of school finals (i.e. stress) for my son-in-law and son, sunshine, food on the table, etc. - and another Mothers' Day with my son with us instead of in the hospital.

In the past few weeks, I've met many amazing Moms. One of them is Claire, whose daughter Rebecca also lives with schizophrenia, as does my son Ben.  Their story is included in the documentary Living with Schizophrenia (click to view it for free), which is one of Hope and Recovery - when treatment includes the right medications, love of family and community, and healthcare providers who treat the human being, not just the illness,  in a partnership of open communication.

I had the privilege of meeting Rebecca and Claire at the National Council Conference last month in Chicago, along with Dr. Rebecca Roma (also in the film). All of these wonderful women inspire me, and I hope they will inspire you too.

Claire is currently reading Ben Behind His Voices, and says:

Rebecca, Claire, Randye at National Council

I am delighting in your book even more now that I know the author!  Your book is amazing... I like the boxes with information in each chapter...I applaud all your hard work to get this book written.  It really is a great resource .

Thank you! and thanks to all who have shared their stories with me, and the world, so that no one has to feel alone.

Also in the film, also an inspiration, are Josh and his family, Ashley, and Dr. Xavier Amador, the author ofI am Not Sick I Don't Need Help. Read it if you still think you must "convince" your ill relative that they have an illness before anything can be done. It, and this documentary, may change your mind - and help you to be a partner in a loved one's recovery journey.

I am a proud M.R.G. (Mother who Refused to Give up). Because of the support, education and inspiration I've gotten from people like Claire and Rebecca - and the others in this film - the choice to remain beside my son in his journey has been easier, more hopeful, and more successful.

Resilience: Bouncing Back...Bolder

One of the letters in "SEARCH" - the acronym I created and present re what families need when mental illness strikes (or, really, we all need for most challenges) stands for:

Families Have Recovery Process Too

R = Resilience

I wrote about resilience in an article about happiness called Bouncing Back Bolder -because the way we deal with setbacks can strengthen us. We all have them, of course - but sometimes the road when dealing with mental illness seems particularly full of detours and pitfalls.

So when I was asked to be a guest on Angel Tyree's radio show, Bouncing Back to Your Brilliance, I figured it was karma! Angel was a terrific, well-informed and empathetic host. You can hear the half-hour show here.

Here is an excerpt from the article, too:

Confession: I don’t really like lemonade all that much. And, I also think that lemons have their place in this world without being sweetened and liquefied: to balance the strong flavor of swordfish, add tang to a glass of water, keep apples from turning brown.

This much, though, I know is true: if life hands you lemons, and you choose to make lemonade, you have the supply the sugar yourself.

Stop Stigma Now!: It May Save a Life

Last night I had the pleasure of being the keynote speaker for the Kennedy Center Inc Annual meeting. The theme was inspiring:

Create Hope, Celebrate Potential.

The Kennedy Center staff does so much to do just that, from educational programs to support services like job coaching, to residential programs and more, helping families when hopes and dreams have to be adjusted due to a disability diagnosis - in utero, at birth, because of an accident, or (as in our case) as a child develops.

Decorated books! for the centerpieces

We cry our tears; then, if we're lucky and well-guided, we wipe our eyes, pick up the pieces, educate ourselves, find a new community, get some support and new knowledge, and learn to understand our "new normal."  Then we adjust. And accept. And, eventually, appreciate the joys in this "new normal."

None of this happens overnight. It takes time (and the "SEARCH" elements I talk about - support, education, acceptance, resilience, communication, and hope/humor) to get to that new place.

And it takes time and patience.

But none of this - none of it - can happen without first addressing the problem of stigma. Especially where mental illness is concerned - because we can't always bring ourselves to see it, visually or emotionally.

Kenton Robinson of the Eastern Regional Mental Health Board wrote a beautiful, heartfelt piece about his experience with family stigma that almost had tragic results for one of his former 7th grade students:

he says:

Depression, bipolar disorder and schizophrenia are illnesses, just as diabetes or heart disease are illnesses, but they are still viewed by many as the victims' fault. That stigma makes people ashamed and afraid, and it prevents many from getting the treatment they need.

I responded:

Shame was part of our initial reaction until we learned better, through NAMI (I became a family-to-family educator and trainer) and through hearing stories of others. I wrote our book hoping it might save a family as ours was saved - and, possibly, save a life.

Thank you for a wonderful article!

Mental Health Awareness Month, Mothers' Day, and Memoir Readers

May is days away - bringing both Mothers' Day and  Mental Health Awareness Month. This has me thinking about wonderful readers who have taken the time to share their thoughts with me - and not only those who are affected by mental illness in their families (one in four families, btw- we are "the 25%"), but also those who see Ben Behind His Voices as, to quote the Library Journal review, "a darn good read for memoir fans."

Sure, I wrote the book to open eyes to the issues surrounding mental illness and the family, and to help others going through it - but under it all, it's also the story of a mother (and a sister) who refused to give up on someone they love. I don't have to have shoveled coal to appreciate Angela's Ashes. And I'm glad that many family members in "the 75%" not directly affected by mental illness in a loved one are still writing to say how much the story of family love and strength means to them.

a gift from Ben, Mothers Day 2011

Here are some recent comments. Thank you!!!

Randye Kaye has touched my heart with this book. It's not just about battling a disease, it's about a mother's love for her family and her relentless crusade to help her children to be the best that they can regardless of what obstacles in life are placed in their way. Randye brings you into her family circle and writes with such emotion that you feel that you are experiencing every high and low with her. It's a story of courage, of never giving up, of hope. It is a story of inspiration that leaves you feeling that although life does not always turn out the way you hope, it can be ok. This book is not just for families of children battling mental illness, it's for all parents who face different challenges with their children. I could not put the book down once I started it. Such an incredible story. I hope there is a sequel so we can see how Ben is coping a few years from now. Great book for all, I would highly recommend reading it. - ESM, latest customer review on Amazon

It isn't often that I spend a little more than a day finishing a book. I usually have 2 or 3 books going at once and I finish them as the spirit moves me...I was truly moved by your story. - MS, Chicago reader

What strikes me most about the story is the reserve of human endurance and the depths of love and resilience of the family...And Ben: how courageous he is and what it takes to manage the disorder comes through on the pages. Randye Kaye's resilience, determination and courage are inspiring to anyone who must go down this difficult road of schizophrenia or any other chronic illness...this is a painful situation and yet the reader is left hopeful because of the power of hope and love. It shows what it means to be human. - book club reader, Syracuse NY

What can you say about a book that chronicles the descent of a sweet child into mental illness? This is an excellent book, which everyone should read. Mental illness -- and especially schizophrenia -- is so stigmatized that people are afraid of those who are ill. It is sad to watch, with the author, as her sweet, bright son deteriorates before her eyes, and the years of seeking it took before someone correctly diagnosed his disease. And her reactions -- not wanting to be with him, but wanting to protect him; hating him while loving him; missing the beautiful child he once was -- are heartbreaking. I highly recommend this book. - Laura Nichols, Goodreads reviewer

A truly inspiring story of the struggle against mental illness has recently come to my attention. Written by the mother of an individual suffering from Schizophrenia, "Ben Behind His Voices" is a truly illuminating tale of one family's long term experience with the various trials and tribulations that go hand-in-hand with mental disorders. - from Max Ingram, blogger at Runic Realities:

Award Winning Blog

Thanks for the Award! Check out Jennifer's Blog

Thanks to Jenifer Robinson, author of the blog Suicidal No More: Choosing to Live with Schizoaffective Disorder , for giving the I Choose to Live award to this Ben Behind His Voices blog!

Jennifer says:

Ben Behind His Voices is a parents' blog about their son's Schizophrenia. They are authors of the book, Ben Behind His Voices: One Family's Journey from the Chaos of Schizophrenia to Hope. They post timely, relevant articles, updates on their advocacy work, and how their son is doing. "Thank you for the work you are doing to raise awareness about Schizophrenia and other mental illnesses."Thanks, Jennifer!

Richard Dreyfuss on Living with Mental Illness

Bravo, Richard Dreyfuss. Not only one of the best actors of our time, but he is speaking openly about his experience with bipolar. As reported last week in the Herald Tribune in this article by Barbara Peters Smith, Richard recently appeared in Sarasota, FL  to speak on “Living With Mental Illness” for the Mental Health Community Centers. The event was sponsored by the Sarasota Memorial Healthcare Foundation. 

In the accompanying interview, Richard says,

Dreyfuss:On an airplane the Delta magazine had an article about corporate executive depression. It said, “If you have any four of the next 14 …” and I had all 14.I got off the plane and called my psychiatrist and said, “we have to kick this into high gear. We have to start and get a solution. If we don’t, there really is no reason for me to go on.”

Herald-Tribune: About what time was this?

Dreyfuss: This was in the middle ‘90s. He said the wisest thing I’d ever heard. He said, “Richard, somewhere in your head is a faucet that is dripping either too quickly or too slowly, and we can help you.”  I can’t tell you the relief that lifted off my shoulders at that moment.

He goes on to share a lot of his experience, and his feelings about how the disorder has affected his life - from birth. Richard has joined the ranks of those of us - people affected by mental illness as well as those who love them - who refuse to feel shame or blame because of a physical illness of the brain. Someday, mental illness will receive the same respect (especially in research and availability of treatment and services) as other disorders. Each story, we hope, bring us closer to replacing stigma with understanding and a vow to improve the way things are.

Here is the comment I left on the site:

Thank you Richard, for sharing so honestly and openly. The fact that the medication that helped you the most was discontinued due to "lack of profit" is appalling. As the mother of a son who has schizophrenia (and I am so very proud of both my children, too!) I can tell you that while his medications are far from perfect, it is that  certain combination that has enabled him to stabilize enough to become an A college student and a valued part-time worker. As for our love? He always had that - but it is easier when psychosis is kept at bay.  The right medication can begin the process. Add love, support, purpose, community and understanding instead of stigma, and we've got a chance at realizing potential. I love your work - always have. And now I can appreciate what you may be going through as a person. Thanks for telling.
best, Randye Kaye
author of "Ben Behind His Voices:One Family's Journey
from the Chaos of Schizophrenia to Hope"

Interview on "Best People Ever" with Deb Scott

Deb Scott, author of The Sky is Green and the Grass is Blue, interviews "the best people ever" - in fact, it's the name of her radio show. Had the privilege of talking with Deb yesterday for about 30 minutes - here is the result!

Best People Ever Show - Randye Kaye

Listen to internet radio with Best People We Know on Blog Talk Radio

Book Reviews from the Field: Psychologist, Psych Nurses

Thanks to Psych Central for adding Ben Behind His Voices to the excellent titles in their Mental Health Library. I'm proud to be listed here!

Readers who also happen to be healthcare providers (psychiatrists, nurses, psychologists, social workers, etc.) give extra hope that the messages in our story (greater empathy, the human face of mental illness, reduction of stigma, need for early detection, more integrated treatment options, new research, increased services, open communication and teamwork in recovery) will continue to branch out to others. Thank you!

From Nicholette Leanza, M.Ed, PCC-S - review on Psych Central

"Ben Behind His Voices is an inspirational story about a family’s experience with schizophrenia... This book is a good resource for individuals with schizophrenia and their families. It also serves as a strong reminder to mental health professionals to treat individuals affected with the illness with dignity and compassion...

She carries the reader along and we, in turn, can feel her pain to find the answers to her son’s issues and problems. She begins some of her chapters with excerpts from Ben’s writings, which provide the reader some insight into his perspective on his struggles:

I am most of my voices

Many different selvesI don’t need to give in to what I fear

Just give in to the fact that I’m afraid.

~ Ben, c. 2001"

Here, Psychiatric Nurse Charmaine Grace shares her perspective on her blogpost "I Love My Job"

"This book is a must-read for anyone working in the mental health field, a family member of someone suffering from a mental illness, or any person who is diagnosed. One very important lesson I learned from this book is that there is so much more to that person behind the hospital room door than a simple diagnosis.

Now, whenever I see a patient, I try to recall this memoir and think about the process of how this person got into a crisis, how afraid he or she may have been, and how afraid his or her family may have been. When I see a family member, I always try to remember to ask, “How are you feeling?” to let him or her know that this is not an easy process, and that his or her health (physical and psychological) is very important to me."

Thanks to you both for reading the book, sharing your thoughts, and for your work in this field.

CELEBRATE THE LIVES OF YOUTH TOUCHED BY MENTAL ILLNESS

COME AND CELEBRATE! I am thrilled to be one of the speakers at this event, but the real stars are the young adults touched by mental illness, and their art and writings. After that, I will meet and speak with member of Families Anonymous in Connecticut. Sharing is healing.

VOICES ART EXHIBIT SEEKS TO RAISE AWARENESS AND CELEBRATE THE LIVES OF YOUTH TOUCHED BY MENTAL ILLNESS

The National Alliance on Mental Illnesses of Connecticut (NAMI-CT) and Young Audiences of Connecticut/An Affiliate of VSA join hands to raise awareness and reduce the stigma associated with childhood onset mental illness through the art exhibit, Voices: The Art of Children, Adolescents and Young Adults Touched by Mental Illness. The exhibit features the work of more than 30 artists between the ages of 8-21, all of whom are either living with or are a family member of a young person living with a mental illness. The Voices exhibit will provide these courageous individuals a venue in which to express their feelings and a window into which others can gain access to their personal lived experience. Several of the youth will be present beside their artwork to share their story of how the illness has been a challenge, as well as an opportunity for personal growth and increased self-understanding.

The exhibit will take place from April 2-13th at the Legislative Office Building, 300 Capital Avenue in Hartford between the hours of 9 a.m.-5 p.m. Monday-Friday.

The Artist Reception will be held on Tuesday evening, April 3rd from 5-7 p.m. and will feature several speakers including Randye Kaye- actress and author of the book, Ben Behind His Voices: One Family’s Journey from the Chaos of Schizophrenia to Hope and Deborah Mendoza and Jana Pietrzyk- two Voices artists and inspiring advocates.

For additional information on either the Voices exhibit or reception, please contact Ann Nelson, NAMI-CT, at either 203-927-1541 or familyresearch@namict.org.

"A Moment of Clarity": Art, Bipolar Disorder, and Courage

I've just learned about a wonderful new documentary called A Moment of Clarity.  I had a long conversation with its producer, Kevin Cullen, and the hope for  this wonderful movie is the same as for Ben Behind His Voices: To reduce stigma, promote understanding, honor the talent and courage of those with mental health issues by focusing on one human story, and share their family's experience as well. Check it out! There is a preview on the homepage, and the movie will be available for screenings to interested audiences. Contact Kevin Cullen for more information.

The story, according to the website, is this:

Isti and His Amazing Art

“A Moment of Clarity” is an intimate documentary providing true insight into the world of bipolar disorder told through the life and art of emerging painter Isti Kaldor.(Pronounced: Ish-tea)

Having aspirations of touching people’s lives by attending medical school and becoming a physician was always his goal. Life however, had other plans. At the age of 19, during his sophomore year of college in Boone, NC, Isti suffered his first manic break and was diagnosed bipolar by the attending psychiatrist at Duke University Hospital.

Continuing to attend school in the midst of making sense of a new reality, he suffered another misfortune. A kayaking accident left him with a broken back. Then, the most devastating loss of all came when his mother, Stefi, lost her battle with lung cancer.

Reeling from his emotional devastation, an unexpected and wonderful thing occurred. Hospitalized during a manic period at UNC Hospital, Isti started to paint. Never having painted prior to his manic break, something in his mind was awoken the results of which were evident in the dynamic expression of his artwork.

11 years and 13 manic episodes later (four of which have occurred during the filming of this documentary), Isti, along with the help of his family, doctors and friends has endured. He has endured by living through what some would consider hell and has arrived at an unforeseen destination. A place where he can finally do what he dreamed of years ago. Touch peoples lives.“

A Moment of Clarity” is his story…

"Shut Up About Your Perfect Kid": Book Review

Gina Gallagher is co-author with her sister Patricia Konjoian of Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Kids.  I first saw this book at NAMI's 2011 National Convention in Chicago, and found it full of useful and realistic information to go with the catchy title.

The authors also write a Shut Up About Your Perfect Kid blog , and I highly recommend that as well.

Since Ben Behind His Voices will be at this year's NAMI Convention in Seattle, I hope to find Shut Up About Your Perfect Kid available there once again, right along with mine.  I could have used this book when Ben was going through frightening changes that shook my parenting confidence to the core.

Here are some things not to say, according to the authors (details in their book and blog):

1) "I don't know how you do it."

2) "Give me your kid for a week and I'll whip him in to shape."

3) "You poor thing."

4) "I'm so lucky, my kids are healthy."

5) "If that were my kid, he'd be different."

As the mother of an "imperfect kid" whose imperfection happens to be gradual-onset schizophrenia which began in his mid-teens, I have been on both sides of the fence; I went from proud Mom (though I like to think I didn't brag) to confused/embarrassed/guilty Mom, and back to proud Mom with a new set of criteria for my pride.  If you need a friendly, realistic and exceptionally empathetic and informative guide to how to maneuver your way through the world of "Perfect Families", I highly recommend this book. Check it out!

PBS AZ Opening Question: "Who is Ben?"

The interview for PBS in Phoenix, AZ last Thursday began with this wide-open question:
Who is Ben?

How to answer? Well -

different trees, same mental health issues

He's my son.

He is a sweet, loving, bright, caring, 29-year-old.

And - he has paranoid schizophrenia.

Very importantly, he is being treated for schizophrenia.

Here's how I answered this question, and the thought-provoking ones that followed, in this PBS interview on Arizona Horizon with Ted Simons.

In the same state where Jared Lee Loughner just lost his third appeal over forced medications, this is a very important distinction. My son, Ben, is in treatment.  Loughner, who killed six people and wounded former U.S. Rep. Gabrielle Giffords and 12 others in nearby Tucson just over a year ago, did so as a person whose schizophrenia had gone untreated for too long - and with disastrous results.

Here, in the state of Arizona where many still seem in a state of emotional disbelief over what happened in Tucson, the consequences of inadequate care and services for those suffering with mental illness seems even more obvious - and undeniably important.

In three days, I have made the rounds, courtesy of the Arizona Foundation for Behavioral Health (AFBH)andASU's Center for Applied Behavioral Health Policy, speaking in a community lecture, two media interviews, and meetings with NAMI as well as university students and educators in the field.

It has been a whirlwind - and I have met so many wonderful people who care about the issues that can make a difference for all of us affected by mental illness: people who have been diagnosed, those who love them, and the community they live in.

I have but one story to tell with full accuracy - our own - but I have heard many more in these few days. I hold tight to the belief that, one story at a time, shared without shame and empowered by education and courage, we can all make a difference in the way services for those with mental illness are funded, and to the laws that need to be passed to increase research, provide resources, and restore dignity and health to those who have been let down by the system that used to help them live a useful, dignified life.

Mental Health Students: Learning from Personal Stories

This entry is a synopsis of a recent post in my "Mental Illness in the Family" blog, where I talk specifically about how mental health nurses have made a difference for Ben, and for our family.

I know from conversations with mental health professionals that they often feel unsatisfied with the fact that they seldom get to see the results of treatment: patients doing better, people in recovery. For mental health nurses, there is no equivalent of the "reunions" that NICU nurses get to see , to witness  the premature infants they'd cared for, now healthy and grown. That is a shame, I think. I wish sometimes that Ben could "visit" the hospital where he got stabilized, to share how well he is doing now. Maybe someday.

Nursing Students at Fairfield University

For now - I feel really proud to have had the privilege of addressing a group of mental health nursing students at Fairfield University in Connecticut. Their professor, Joyce Shea, had heard me speak at the APNA (American Psychiatric Nurses Association) Annual 2011 Conference, and assigned Ben Behind His Voices as required reading for her mental health nursing students.

To my great delight, Ms. Shea shared with me some of her students' reactions to the memoir, and invited me to speak with them about how mental health nurses can make a real difference in the family experience when mental illness results in hospitalization.

The students had to answer some questions after reading the book, and Ms. Shea was kind enough to share their answers with me.

Question #3 was thought-provoking: What would be like to have Ben as a client?

some answers: "a great experience because these people are special and unique...frustrating because he can be stubborn...challenging yet rewarding to see improvements...his illness does not define him..."

Question #4 brought tears to my eyes: What would be like to have Ben as a brother?

some answers: " like most other diseases mental illness is a family disease...emotionally draining, difficult not knowing what would come next...struggle to accept everything...scary not knowing which version of my brother I would be dealing with each day...however Ben is very loving so it would probably also be very rewarding if I could help him..."

Not an easy question, perhaps - but a key to the compassion that helps families so much.

I loved meeting these students, and hearing their commitment to the work they are training to do. I was thrilled to have the chance to humanize not only the patients they will meet in their careers, but their families as well.  Since they had already read my book, the messages only had to be reinforced rather than introduced.

I look forward to similar opportunities in the future. One of my hopes for Ben Behind His Voices is that it will reach the professionals, both practicing and in training, to help them see the human face of the illnesses they will try to treat.  I speak soon at Arizona State, Mount Union, and other venues. Please feel free to contact me if you would like to know more about Ben Behind His Voices as required reading. Thanks!

Art and Advocacy: When Worlds Intertwine

Like so many people I know, I have no short answer when people ask me, "So what do you do?". If given just a few words, I guess I can say "I talk and write for a living", or "I communicate professionally." But, really? I am a serious dabbler - and insatiably curious information-seeker and sharer.

Author, speaker, stage actress, singer, voice talent, audiobook narrator, advocate, TV/film/improvisation performer, drama teacher, Voiceover coach, NAMI educator, ADL diversity trainer, presentations coach,blogger, radio broadcaster, MC --and that's just my work life. You know what I mean - how many roles do you play in one day?  My professional website home page even has four portals to explore. Still, it adds up somehow - like when the bills get paid - and even occasionally makes sense.

When I get the chance to speak to audiences about Ben Behind His Voices, it's a wonderful opportunity to marry a lot of these worlds. Here, in this clip from a recent library appearance in Trumbull, CT, you can hear an excerpt from the book as well as some thoughts on Ben's progress and why understanding and respect are so vital.

Many of these roles layered beautifully when I got the chance as voice talent to narrate the audiobook of Ben Behind His Voices. Strange to step out of  the writer's shoes and slip on those of the narrator...oh, the urge to rewrite as I narrated! But I am thrilled that the end result was so beautifully produced by Spoken Word Inc, received starred reviews, and that we were nominated as "among the best of the best" for Publishers Weekly's 2011 Listen Up Awards! In the "read by author" category, we were in great company: John Lithgow, Jane Lynch, Penn Jillette and Amy Chua (Tiger Mom lady).

OK, so Lithgow won - but still. Can't think of anyone better to lose to. I get the "it's an honor just to nominated" thing now - really. Thanks!

Mental Health, Community and Potential:The Clubhouse Model

Last week NAMI-CT's Fairfield Affiliate hosted an informative and inspiring Legislative Social - over 100 in attendance, including about a dozen state legislators, all there to hear about programs and services that help those affected by mental illness live fulfilling, purposeful, hopeful lives. I wrote about it here as well, on my Mental Illness in the Family blog.

My point there, as expressed in my comments at the meeting: don't let the success of these programs and the amazing young adults participating in them lull you into a false sense of security that continued funding is not necessary. It is. Oh, it is. In this climate of budget cuts for the look of the bottom line, never forget that treated mental illness is always way less expensive than the cost - financial and emotional - of untreated mental illness. Keep funding what works!

And here is something that works: the International Clubhouse model. Fountain House in NYC, Laurel House in Stamford CT, Shore Clubhouse in NJ, many others, and here an example from Bridge House in Bridgeport CT. This video was written, produced and voiced by the young adult members at Bridge House.

Possibility, Respect, Understanding. Here is the video. Enjoy.

Dear Readers: Thanks for your stories

One of the best gifts in any day is finding an unexpected letter or e-mail from someone who has just read Ben Behind His Voices . I treasure these words, and am grateful to you who take the time to share your reactions and stories. These are the best reviews an author can have, especially when they validate the reasons for writing the book in the first place.

A sample from this week's inbox:

"I have just finished reading your book---my first on mental illness---and feel SO enlightened.  It is  well-written, from the heart ...That love, perseverance and hope continue to be greater than the struggle you face /have faced was a key take-away for me.  Thank you for writing this extremely insightful and honest testimony.  The resources at end of the book are an excellent addition."- reader in CT

"I recently met you at the American Psychiatric Nurses Association Conference in California. Your talk was extraordinary and very moving, and I continued to be captivated by your book on the plane home. I will be teaching a group of sophomore nursing students in their Mental Health Nursing class this spring, and have made your book required reading for them over the winter break." - University School of Nursing Professor and Program director

"I have just finished your book.  I read it in its entirety in 2 days...I am still reeling inside from your candid revelations and your unbelievably forthright delivery.  I have to stop typing every once in a while to wipe my tears as I try to put into words what I want to say to you. .. Thank you.  Thank you for having the guts to tell your story, Ben's story, Ali's story and for giving the rest of us hope."- A sibling dealing with mental illness in her sister

Thank you!

Randye

Looking Ahead, Reflecting Back: BBHV 2011, 2012

January 4th already. Happy New Year, 2012! Always a good time to look back - but not for too long. Also an exciting time to preview what's possible, as well as planned,  for the new year.

BBHV spotted at social workers Conference

In our family we do a "year in review" of our own as we approach New Year's Eve, and certainly tops for me in 2011 was the publication of Ben Behind His Voices, hardcover and audiobook, and all the opportunities that has brought with it to reach families, healthcare professionals, and PAMIs ("People Affected by Mental Illness", the best term I can come up with so far) with its story, information and messages. This year I have been privileged to present at the APNA (American Psychiatric Nurses Association) Annual Conference, sign books at the US Psych Congress, attend and do a poster presentation at NAMI's Annual Conference in Chicago, and connect with so many wonderful readers at author talk/book-reading events for NAMI, RJ Julia Bookstore, Barnes and Noble, Written Words, Congregation B'nai Israel in CT, Fellowship Place, Laurel House, and many more (see "News and Events" for details).

Exciting, too have been TV and radio appearances on Fox News,PBS, ConnTV, WTNH's "Connecticut  Style", NPR and more to tell our family's story  and share messages like the need for open communication, early detection, more research, better understanding, increased respect, and the importance of purpose, structure, community and love to the recovery process. The Press Room has links to more of these interviews.

On a more personal level, 2011 brought a summer challenge for us, when Ben's treatment services were cut drastically and he was re-hospitalized for almost six weeks. We faced, once again, the possibility of losing so much of what he had gained.  Thankfully, he has returned to us once again to resume treatment and the progress he has been making in school, work, and family. We remain so grateful for yet another chance, and also aware that there is so much work still to be done to improve treatment, medical advances, and attitudes.

So - what will 2012 bring? For my son and family I hope for stability and the continued miracles of "ordinary" life and growth. As for the book and audiobook, I hope for more chances to speak with audiences and reach readers, on a national and international level. I also have hopes for increased outreach to professionals and future professionals. I have heard from so many readers that this should be "required reading" for students in this field, and am thrilled to have been asked to speak at two universities so far in 2012.

Some of this is already in the works for 2012, and Ben Behind His Voices hits the road to (so far): Washington DC in January, New Haven CT (Yale) in February, Phoenix Arizona in March (AZ State), Chicago in April (National Council), with a  stops in the works for Alabama, California, Seattle, Ohio NYC, Boston and more. As they say, stay tuned for details...here and/or at Mental Illness in the Family award-winning blog at HealthyPlace.com.

Thank you for being such an important part of 2011.  Here's to all that is possible in the New Year!

Randye